Resources List

A guide for carers, families and friends of dying people If you are caring for someone who is in the last stages of life, or who may be soon, this booklet is for you.

It is designed to help prepare you for what to expect in the very last days and hours of a person’s life.

This booklet was created by Northern and Belfast Trust palliative and bereavement professionals, alongside local service users.

This booklet is a simple tool that you can use to document your personal wishes for end of life care and funeral plans.

Once completed, you should keep it in a safe place.

Most importantly, let a loved one or trusted friend know where it has been stored so they can access it easily when the time comes.

Remember, you don’t have to fill this booklet in all at once, you can come back to change or update it at any time.

Have you reviewed your Will? Watch this short video to find out why you should.

Sharon was joined by John Wonnacott, MacMillan Palliative Care Chaplain, when speaking to Year 2 nursing students at Ulster University. John gave a powerful talk on Spirituality - stressing that in order to deliver person-centred care, staff must appreciate ‘the biography alongside the biology’ of a person.

John Wonnacott, MacMillan Palliative Care Chaplain recently spoke to Year 2 nursing students at Ulster University about misunderstanding that can arise around the word 'spirituality'.

John Wonnacott, MacMillan Palliative Care Chaplain suggests everyone can use spiritual care, regardless of how sick or well we are.

A short animation that explains how palliative care can improve quality of life for a person living with a life-limiting illness and support those important to them.

A short animation that explains the grieving process following the death of a loved one.

What is a Digital Will?

Sharon explains the difference between Power of Attorney and Enduring Power of Attorney in Northern Ireland.

The four components of Advance Care Planning in Northern Ireland.

One of four top reasons people use illegal borrowing in Northern Ireland was for healthcare which included funeral expenses. Would mammy really want the best, or would she prefer you not go into debt for her funeral?

The WHSCT Palliative Care Keyworker Patient Information Leaflet to note down the contact numbers of the health care professionals involved in your case.

This booklet is about planning ahead and making choices about your future care if you live in Northern Ireland. It is for anyone who wishes to plan ahead, whether they have a serious illness or not. Planning for your future care is also called advance care planning. It is important in case you ever become unable to make choices yourself. This booklet was produced by Palliative Care in Partnership, the Public Health Agency, and Macmillan Cancer Support.

A short animation introducing the importance of planning for the future.

A new online toolkit for people with advanced cancer has been developed by the Northern Health and Social Care Trust.

Inspired by patient feedback, and designed alongside local service users, its focus is on living well and supporting the best quality of life.

The series of videos are all led by healthcare professionals who provide a wide range of practical guidance and advice so people feel better equipped and have greater confidence around managing their wellbeing.

Allied Health Professionals (AHPs) help people to live their lives as fully as possible by treating, rehabilitating, and improving the lives of patients. To hear from a Speech and Language Therapist, a Dietician, a Physiotherapist and an Occupational Therapist please watch the video below:

A beautiful animation illustrating Bill's end of life journey.

A chaplain can offer support to help with your spirituality needs, these needs can be both religious-based or not. For more information on how a chaplain can offer support, please watch the video below:

A selection of books, for adults and for children, on topics relating to death, dying and bereavement. These books are available to borrow from the libraries below: Derry City Central Library, Omagh Library, Newry City Library & Cookstown Library

A District Nurse is your Palliative Care Keyworker. They can help plan and coordinate your care around what is important to you, sometimes through Advance Care Planning. They will also link in with other services that will support you and those closest to you. To hear more on how they can support you, please watch the video below:

Dying Matters Webinar Insights Report May 2021

A short animation that explains what sources of support are available to people who are nearing end of life.

Your GP can offer support to you and to those closest to you. They can help you manage your illness so that you get the care when you need it. To hear more on how your GP can offer support, please watch the video below:

Hospices provide specialist palliative care and end of life care services. Most hospices offer care in the community, in outpatient clinics, in day hospice and in an in-patient unit. To hear more on what hospices offer please watch the video below:

Planning your funeral in advance can give you peace of mind that your wishes are carried out. Having plans in place also removes the burden from those closest to you. To hear more on the different things to consider when planning a funeral , please watch the video below to hear advice from a Funeral Director.

A woman’s reflection on the death of her husband and her life thereafter.

The Marie Curie service offers support to people who need end of life care. Nurses and Nursing Assistants can care for you at home so that you may stay at home to die, if that is your wish. To hear more, please watch the video below:

This video provides useful information about the range of health and social care professionals who deliver palliative care services and the support they can offer. Please click the link below to view the video:

An exhibition of art using art forms such as paintings, sketches and 3D art installations on the theme of frailty and the power of community connectedness.

This booklet has been written for you, your family and carers. It explains what is meant by the term ‘palliative and end of life care’. It also provides useful information about the range of health and social care professionals who deliver palliative care services and the support they can offer. Contact details apply to services in the NHSCT. Other trusts may have similar services but please check with your GP or District Nurse for local contact details.

A Palliative Care Clinical Nurse may be involved in your care when your needs are more complex. They can help to assess and manage your physical, emotional, spiritual and social needs. To hear more on how they can support you, please watch the video below

A Palliative Medicine Consultant can help you when your condition becomes difficult to manage. They can help with pain management and other symptoms such as nausea and breathlessness. To hear more on how they can support you please watch the video below

Your local pharmacist can help by:

Providing information about medicines
How to take medicines
Symptom control
Pain management
To hear more about how your pharmacist can help, please watch the video below:

Women from farming families across Northern Ireland had the opportunity to join Heather Wildman of Saviour Associates for an evening of food, drama, inspiring stories and practical advice on planning for succession 🚜

A Specialist Palliative Care Social Worker can offer support to you and those closest to you. They offer emotional and practical support, and information to help you manage the changes that will happen on your palliative care journey. To hear more on how they can support you, please watch the video below:

'Sure I'm Only 76'

It is a real privilege when someone selects you to discuss their worries and sadness. This resource gives you information on how you can really listen to what they have to say.

View all 11 portraits with insights into the important benefits of palliative care.

Complete this record for all your online financial and legal records. Print and store in a safe place or email it to someone you have nominated to help manage your accounts on your behalf, i.e. your ‘Power of Attorney’ or ‘Enduring Power of Attorney’.

An interview with a leading NI barrister on the importance of making a will.